Bob and Gill Baker are founders of this group and parents to Tom, a 34 year old dad of four - with BWS. Whether you have a BWS baby too, or someone in your family needs some support, it's good to talk to someone with experience of what to expect. Bob works closely with Great Ormond Street Hospital, and has a wealth of advice. He can direct you to further reading or put you in touch with a family near you.


Call us

We're on 44 (0)1258 817573 (daytime and evening)

Or on 44 (0)7889 211000



Prefer to email? Contact Bob at or preferably