We provide information about Beckwith Wiedemann Syndrome, links with other families and a network of support

The Beckwith-Wiedemann Syndrome Support Group was started in 1990 by a group of parents with BWS children to share problems and information and to act as a self-help group.

It aims to promote both public and professional awareness of BWS and to support and encourage research.

The UK group has links with BWS groups in Spain, Italy and America.




Our story, about BWS and further information about parents' most common concerns 

Learn More →



Tips and stories from parents, further reading and how to get in touch with other families

Find Out How →